Caring for Special Babies & Children/Adults
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)

SOFT News

SOFT News

Ballivor Coffee Morning Update

Ballivor Coffee Morning

A coffee morning was held for SOFT in the Community Centre in Ballivor by Hazel Doyle and friends.

This was an ideal event on good day Saturday, at a good time 11am to 1pm, for a nice duration of two hours, at good location in the community centre, in a good room beside the kitchen, with a good mixture of friends and associates, with a great selection of cakes and buns with SOFT on them that was well appreciated, on top of that plenty of tea and coffee and even a mocha or two. Why was the coffee as good as Starbucks or Costa? Because it was local!.

We even had a raffle with lots of tickets sold and lots of prizes won that were donated by the community.

This is how a small idea can develop into a big event!

Thanks to Hazel and Company for organising this event and inviting us all to it.

I will say no more!

 

S.O.F.T. Coffee Morning

Community Centre

Ballivor

Co. Meath

 

 

Hazel Doyle is organising a Coffee Morning for SOFT in memory of her daughter Elizabeth still born in 1999 with Edwards’ Syndrome Trisomy 18.

The Coffee Morning will be in Ballivor Community Centre in Co. Meath on Sat17 February 2024 11am to 1pm and all are welcome. If you can or can’t make it you can still donate on this campaign here..

Let’s spread the generosity around Sat 17 February 2024 and make it a GIVING Saturday.

SOFT Ireland is appealing to the General Public for a small donation to help us continue our work. Fundraising and donations are our main source of income and that is very challenging in these difficult times. Let’s spread the generosity and we will keep it featured on an ongoing basis just in case you forget or didn’t get a chance.

Location HERE

Just in case you don’t make it and want to do DONATE Click HERE

 

 

While most people have 23 pairs of chromosomes, some have a condition that causes extra partial or full chromosomes in their cells. Those extra chromosomes can cause a range of health problems, learning difficulties as well as delays in physical development. We  hope to raises awareness about trisomy conditions and the challenges these conditions may pose to individuals and families, SOFT Ireland provide support during pre-natal diagnosis, during the child’s life and after the child’s passing.

Support Organisation For Trisomy (S.O.F.T.), a national registered charity, is a voluntary group dedicated to providing support, assistance and information to families of children diagnosed and born with Patau’s  Syndrome (Trisomy 13) and Edwards’ Syndrome (Trisomy 18).

S.O.F.T. Ireland provides support by :
Providing information e.g. “Patau’s Syndrome T13 Edwards’ Syndrome T18 Pre-Natal Diagnostic Support and Information Leaflet” and “Why Our Baby?” Book
Putting families in contact with one another
Funding home and family support
Funding respite assistance
Funding bereavement counselling
Publishing regular newsletters
Organising family gatherings and arranging professional speakers
Raising funds through various events
Linking with S.O.F.T. organisations worldwide

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If donating using GivenGain then you have three options below either of which is acceptable.
“Don’t cover the fees for the charity” 0%
“Cover the fees for the charity” 8%
“Cover the fees for the charity and support the work of the GivenGain Foundation”  >8%