Caring for Special Babies & Children/Adults
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)

News

Ros Na Rún

  Ros na Rún Starring Mairtin O’Cathasaigh as Clint Montgomery     Congratulations to Mairtin O’Cathasaigh on making his debut in Ros na Rún on Wed 16 Nov at 8.30p.m.on TG4. Mairtin and his parents Margaret & Liam Casey are a big part of our SOFT Family and SOFT is...
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Tommy Gallogly RIP

  Tommy Gallogly RIP   SOFT Ireland extend our sincere sympathy to Anne Marie our surviving adult and Aishling our committee member on the death of their father Tommy R.I.P. Date of Death: Sunday 6th November 2022. The death has occurred of Tommy Gallogly Sonnabeg, Aughavas, Co. Leitrim, Sunday 6th of...
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Bereaved Children’s Awareness Week 2022

Bereaved Children’s Awareness Week 2022 14 – 18 November 2022 Every November, the Irish Childhood Bereavement Network (ICBN) organise a series of events across Ireland to highlight bereaved children’s needs and provide a voice for them to be heard. Children are the “hidden mourners” in our society they feel the...
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Pre-Natal Diagnosis Support & Information Leaflet

Patau’s Syndrome T13 Edwards’ Syndrome T18 Pre-Natal Diagnosis Support & Information Leaflet   Our revised Leaflet was launched at our Autumn Break/AGM on 8th October 2022. This followed the revision of our handbook “Why Our Baby?” Under the heading “When You Receive the Diagnosis” we recommend looking at the “Pathway...
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SOFT Ireland Melbourne Marathon 2022

Melbourne Marathon 2022  Sunday 2 October 2022 42.195km   Good Luck to Michael in the Melbourne Marathon. Estimated Start Time in Irish Time Sat 01 Oct 2022 21:00 Congratulation to Michael Rooney on finishing the Melbourne Marathon. Well Done  on raising funds for SOFT! See result HERE This cause will...
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GivenGain Campaign for SOFT Pre Natal Leaflet Appeal

GivenGain Campaign for S.O.F.T. Ireland Pre Natal Leaflet Please Donate €20 And Request FREE Complimentary Copy of “Why Our Baby?” This campaign in now paused and thank you for you for your donations and cooperation SOFT Ireland is appealing to the General Public to show your support with a small...
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Yvonne & Ayla on Virgin Media News

  Yvonne & Ayla on Virgin Media News  Wed 17 Aug 2022 @ 5.30p.m.       Watch it back on the link below.14 minutes in. Virgin Media Television Player https://www.virginmediatelevision.ie/player/show/1513/0/0/ Yvonne & Ayla as well as “Children in Hospital Ireland” are calling for a new social protection payment in...
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Mercury Lilliput Legend Adventure Race 16 July

Mercury Lilliput Legend Adventure Race Congratulations to Mercury Team participating Saturday 16 July This charity cause is now closed. Thank you all for everything, See Location This cause will close Sun 31 July 2022. S.O.F.T. Ireland would like to thank everyone who donated, participated and contributed to make this event...
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Census 2022 Time Capsule and Baby Loss

Census 2022 Time Capsule and Baby Loss SOFT member Niamh Connolly Coyne lost her daughter Mia Rose before birth. She has championed a change in Census 2022 which allows families to acknowledge their loss. Your Census 2022 household form has a new feature – the Time Capsule   At 32...
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