Caring for Special Babies & Children/Adults
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)

News

Seachtain na Gaeilge

Fáilte go S.O.F.T. Éireann Eagraíocht Tacaíochta do Trisomy 13/18   S.O.F.T. Is grúpa deonach é Éire atá tiomnaithe do thacaíocht, cúnamh agus faisnéis a sholáthar do theaghlaigh leanaí a diagnóisíodh agus a rugadh le Siondróm Patau (Trisomy 13) agus Siondróm Edwards (Trisomy 18). Is minic a bhíonn coinníollacha tromchúiseacha bagrach...
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Trisomy Awareness Month of March

  Trisomy 18 (Edwards’ Syndrome) Awareness Day March is Trisomy Awareness month. Saturday 18 March is Trisomy 18 (Edwards’ Syndrome) Awareness Day Saturday 18 March 2023 is Trisomy 18 Awareness Day. It was chosen specifically because it represents 3 chromosomes on the 18th chromosome. One in 6000 pregnancies is not...
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Ballivor Coffee Morning Update

Ballivor Coffee Morning A coffee morning was held for SOFT in the Community Centre in Ballivor by Hazel Doyle and friends. This was an ideal event on good day Saturday, at a good time 11am to 1pm, for a nice duration of two hours, at good location in the community...
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Northern Irl SOFT UK Meet Up

Northern Ireland SOFT UK Meet Up Date: Sat 10th February 2024  Paula and Alex were invited to go to 2nd Annual Regional Meet up taking place on 10th Feb, at the Corr’s Corner Hotel from 1pm to 5pm to network and meet their SOFT UK Northern Ireland families. We were...
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Saint Brigid Day & Cross

  Saint Brigid’s Cross Thur 1 Feb 2024 is Saint Brigid’s Day     Brigid’s cross or Bridget’s cross is a small cross woven from rushes and has four arms tied at the ends and a woven square in the middle. Brigid’s crosses are associated with Saint Brigid, a patron...
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Rare Diseases Ireland

Rare Disease Patient Forum   Expression of Interest Rare Disease Patient Forum to assist in the development of new National Rare Disease Strategy for Ireland Expressions of interest (EOI) are being sought from people living with rare diseases, their family members and the wider rare disease community to contribute to...
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RTE Late Late Toy Show

  RTE Late Late Toy Show Friday 24 November, 9.35pm Patrick Kielty is getting Toy Show ready, as he preps himself for the biggest night of the year with a little help from the experts. Check out this year’s promo as everyone is invited to Be Toy Show Ready! RTÉ One...
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Children’s Day Mon, Nov 20, 2023

Children’s Day Mon, Nov 20, 2023 Children’s Day is celebrated on 20th of November. It’s all about supporting children’s rights and helping children everywhere. World Children’s Day is a day for children, by children. The day is designed to put a spotlight on key issues affecting children and to have...
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Sligo Remembrance Service

A PRAYER SERVICE IN  REMEMBRANCE of all Deceased Children, Infants & Pregnancy Loss. SLIGO UNIVERSITY HOSPITAL ON WED 15th  NOV 2023 AT 8PM St Anne’s Small Chapel, Cranmore, Sligo, F91 R250.   Sligo University Hospital (SUH) is inviting parents and their families who have experienced bereavement, through the death of a...
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