Caring for Special Babies & Children/Adults
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)

SOFT News

SOFT News

Baby Christopher: An avoidable medical tragedy RTE1 Update

Baby Christopher:

An avoidable

medical tragedy

 
 

Update

Parents of Baby Christopher talking to Brendan O’Connor on RTE1

Saturday 28 AUG • 28 MINS • BRENDAN O’CONNOR RTE1 Podcast

Rebecca Price and Pat Kiely talk about the tragic loss of their baby.

RTE1 Podcast HERE

 

Harmony Test

“the test, while marketed at providing 99% accuracy, is only designed to identify a “high risk” of the presence of the trisomys. A follow-up invasive test is required for confirmation.

The devastated couple were asked to come in the following Monday for a chorionic villus sampling (CVS) test, which would provide a definitive diagnosis.

The CVS is one of two tests designed for this purpose. The other is amniocentesis, which is considered to be more accurate.

Breda O’Brien Irish Times

“A  “never event” in medicine is a preventable error so serious that it should never happen. The Merrion Fetal Health Clinic – owned by five consultants Peter McParland, Fionnuala McAuliffe, Rhona Mahony, Shane Higgins and Stephen Carroll – and the National Maternity Hospital (NMH), admitted full liability this week for a “never event”: aborting a healthy baby, Christopher Joseph Kiely.

This is not just a private tragedy resulting in unending grief for Christopher’s parents, Rebecca Price and Patrick Kiely. The systemic failures leading to this catastrophe must be fully examined.

The couple is calling for an independent inquiry to establish the full facts of what happened to them, how many other times this tragedy has happened, and for consistent implementation of standards to prevent it from ever happening again.

The journey to getting an admission of complete liability took two years, three months and nine days.”

More HERE

ANN O’LOUGHLIN Irish Examiner

“They are now at the beginning of the end of a harrowing, cruel and torturous journey.”

Those were the words of Rebecca Price and Patrick Kiely’s solicitor outside the Four Courts on Wednesday as the couple settled an action over the termination of their healthy pregnancy after being wrongly advised the baby had a fatal foetal abnormality.

Rebecca Price, clutching her partner’s hand, shuddered and fought back tears as their solicitor Caoimhe Haughey pointed out that the son they call Christopher Joseph would have been two years old this summer.

Now the couple want to meet with Health Minister Stephen Donnelly as soon as possible to work with him on ways to ensure what they called “ this never event” never happens again.

More HERE

Evoke

“A grieving couple whose healthy baby Christopher was terminated after he was wrongly diagnosed with a fatal abnormality have emotionally reflected on their ‘horrendous loss’.

Rebecca Price and Pat Kiely went through with a termination of pregnancy following a seemingly definitive diagnosis of Trisomy 18 – Edwards’ Syndrome – in March 2019. “

More HERE

Parents of Baby Christopher | Brendan O’Connor – RTE

Rebecca Price and Pat Kiely talk about the tragic loss of their baby.

More HERE