Website Refreshed – New S.O.F,T Booklet – Tapestry
Website refreshed November 2008
A New SOFT Ireland website design will be launched on Saturday 8th of November during the 2008 AGM Conference.
New S.O.F.T. booklet November 2008
The New SOFT booklet, Why Our Baby?, will be launched on Saturday 8th of November during the 2008 AGM Conference.
In Glenroyal Hotel, Maynooth, Co. Kildare
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PHASE ONE – S.O.F.T. Tapestry Aug 2013
This is Phase One of tapestry – this phase is Pateau’s babies. Phase Two will be Edward’s. If you would like to have your child included contact Alma Stanley with details. €35.00 for square, please include babies date of birth and date of passing and name as you would like it to appear on tapestry. Alma Stanley Aug 2013
Hospital Project April 2014
SOFT Ireland have made this year the year to re-introduce ourselves to the Maternity units across Ireland. We plan to put in place a team to work with John and Helen Shine. John and Helen have put a lot of work into creating contacts within these departments and trying to keep information updated and keep our name to hand in time of need. The team will work as a local contact with hospital in your area, starting first with presenting laminated colour posters with SOFT contact details clearly visible to be positioned in staff/family rooms. If you think you could spare a few moments to visit your local hospital please contact us with your name and location.
This is still ongoing with a dedicated Information officer and Team
soft.informationofficer@gmail.com
Family Day – Sat May 3rd 2014 Limerick
Family fun day at the University of Limerick Campus, fun for all ages, something old and new.
Outline of Events for Day
Opening entertainment at 12 noon by local Spoken Dancers
12.30 – 14.00 – Leon the Magician for younger members
activities also organised for teens
14.00 – 15.30 family fun Table Quiz
16.00 – 17.30 Complimentary Buffet Lunch
(please confirm lunch numbers with Eileen 0879982416)
Joe Healy will recite a poem during balloon release
Tickets for raffle will also be on sale on the day
Contact Nicola/Lisa at Castletroy Hotel 061335566 for SOFT rates for night
Michael Fagan has organised evening reception at The Stables Club
We need to know numbers for lunch and also breakdown of adults/children on day
FACEBOOK PAGE UP AND RUNNING Feb 2015
We have found a new administrator for our Facebook page. Many thanks to Moya Verling for taking on the role. We look forward to meeting and chatting with you there.
https://www.facebook.com/softireland/
Raising awareness of SOFT– Hospital program
March 2017
Raising awareness of SOFT – Hospital program
Thank you to everyone who volunteered at our AGM 2016 to help Fiona & Patricia out with getting SOFT information into the hospitals. We are always looks for people to help out with this as it is an important task to raise awareness that as we are a group dedicated to providing support, assistance & information to newly diagnosed families of children with Edwards’ or Patau’s syndrome. If you would be able to assist with getting some leaflets into your local maternity hospital please email soft.informationofficer@gmail.com
SOFT Ireland have made 2014 the year to re-introduce ourselves to the Maternity units across Ireland. We put in place a team to work with John and Helen Shine. John and Helen have put a lot of work into creating contacts within these departments and trying to keep information updated and keep our name to hand in time of need. The team work as a local contact with hospital in your area, starting first with presenting laminated colour posters with SOFT contact details clearly visible to be positioned in staff/family rooms. If you think you could spare a few moments to visit your local hospital please contact us with your name and location.
This is still ongoing with a dedicated Information officer Paudie Fitzgibbon and Team in 2019
soft.informationofficer@gmail.com
Perinatal Conference Dublin
Perinatal Conference Dublin January 2016
We are delighted to be supporting this important conference on Holistic approach to management and treatments of complex prenatal diagnoses taking place in Dublin on Jan 30th. Please share with anyone who is involved in the care and treatment of pregnant women, or the newborn children – there is a fantastic line up of speakers from across the globe. http://www.perinatalconference2016.com/
Every Life Counts Campaign March 2015
SOFT Irl are supporting the Every Life Counts campaign to stop the phrase “incompatible with life” being used as a medical reference or diagnoses for critically ill babies. Researchers and families (including some of our SOFT members) will launch the ‘Geneva Declaration on Perinatal Care’ at the United Nations in Geneva tomorrow March 11th.
It states that “As medical practitioners and researchers, we declare that the term ‘incompatible with life’ is not a medical diagnosis and should not be used when describing unborn children who may have a life-limiting condition.” The full declaration can be read by clicking the below link. http://www.genevaperinatalcare.com/
Rainbow babies April 2016
Big Congrats to Sarah, Stephen, Jodi & Leah Hynes on the safe arrival of Sadie Rose to Sandra & Enda Mannion on birth of Tommy Sean and to Daniela & Paudie Fitzgibbons on the birth of Anna
Wishing Kelly M. Wrightson & Sean, Moya & Tom Power, Michelle & Robert Stone & Kerry & Richard Leckey as they get closer to their due dates.
Anyone else expecting a precious rainbow? Let us know soft.contactme@gmail.com
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